Grand Blanc, Michigan, August 16, 2025
News Summary
Ryan Majewski is embarking on a remarkable journey across Michigan in his 1953 Plymouth Cranbrook, ‘The Hoopty,’ to raise awareness and funds for his son Max, who has SPG4, a rare genetic condition. The ‘Sick Michigan Miles’ tour aims to gather essential financial support for Max’s treatment, estimated at nearly $3 million. The tour concludes at Durana Dragway, where they hope to reach their $5,000 fundraising goal while advocating for all children affected by SPG4.
Grand Blanc, Michigan – In a heartfelt effort to raise awareness and funds for his son Max’s rare genetic condition, Ryan Majewski is undertaking a remarkable journey driving his 1953 Plymouth Cranbrook, affectionately known as “The Hoopty,” across Michigan. The drive, part of the “Sick Michigan Miles” tour, has a dual purpose: to promote understanding of SPG4, a progressive disease that affects muscle strength and coordination, and to gather essential financial support for Max’s condition.
Max Majewski, a vibrant young boy approaching his fourth birthday, is one of only 23 children globally diagnosed with SPG4. This debilitating condition leads to muscle weakness and deterioration over time. The treatment that could potentially replace Max’s faulty gene is estimated to cost nearly $3 million, a significant amount that has prompted the family to seek donations from community members and supporters.
As part of his tour, Ryan Majewski is driving through various notable drag racing locations including the Durana Dragway, Mid Michigan Motorplex, Northern Michigan Dragway, and Ubly Dragway. The Sick Michigan Miles tour will conclude at Durana Dragway on August 17, where Ryan hopes to rally more supporters. The Majewski family has so far raised approximately $3,000 towards their fundraising goal of $5,000.
The family has teamed up with the Lilly and Blair Foundation, an organization that focuses on funding research for SPG4. Various fundraising efforts, including merchandise sales, are being utilized to reach their financial goal while simultaneously raising awareness about SPG4 and its impact on children like Max. Ryan Majewski has been reported to be in St. Ignace, pushing forward on his quest to reach Ubly, demonstrating his commitment and determination.
Despite the challenges associated with his condition, Max Majewski remains a joyful and spirited child, embodying hope and resilience. The family’s mission extends beyond their personal journey; they aim to highlight the struggles of all children living with SPG4 and advocate for the resources needed to address this rare disease.
About SPG4
SPG4, also known as hereditary spastic paraplegia, is a genetic disorder that leads to progressive weakness and stiffness in the legs. It primarily affects mobility and can significantly impact a child’s quality of life. Awareness and financial support for research are crucial in finding viable treatment options for affected children.
The Journey’s Significance
Ryan Majewski’s journey is not just an opportunity to showcase a classic car; it’s a testament to a father’s love and dedication to his son. By combining his passion for classic vehicles with a charitable endeavor, he hopes to inspire others to take action in support of rare disease awareness. The family’s efforts highlight the importance of community support in overcoming the challenges posed by SPG4.
Conclusion
As Ryan Majewski continues his drive across Michigan, he encourages others to participate in the fundraising efforts and raise awareness of rare diseases. With each mile traveled, he hopes to draw attention to SPG4 and gather the necessary resources to support Max and other children facing similar medical challenges.
FAQ Section
What is SPG4?
SPG4 is a rare genetic disorder that leads to progressive muscle weakness and stiffness, primarily affecting mobility.
How many children are diagnosed with SPG4 worldwide?
Currently, there are only 23 known cases of SPG4 in children around the world.
What is the cost of the treatment needed for Max?
The treatment estimated for Max’s condition costs nearly $3 million.
How much money has the Majewski family raised so far?
The family has raised approximately $3,000 towards their goal of $5,000.
What events are included in the Sick Michigan Miles tour?
The tour includes stops at various drag racing locations: Durana Dragway, Mid Michigan Motorplex, Northern Michigan Dragway, and Ubly Dragway.
When does the Sick Michigan Miles tour conclude?
The tour concludes at Durana Dragway on August 17.
Deeper Dive: News & Info About This Topic
HERE Resources
Additional Resources
- ABC12 News
- Wikipedia: SPG4
- MidMichigan Now
- Google Search: SPG4 genetic disorder
- Burton View
- Encyclopedia Britannica: rare disease
- Fox 17 News
- Google News: rare diseases
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